Hey all - I'm going to be out until late Sunday night. My family is traveling to Washington D.C. for the annual meeting of the Cystic Fibrosis Foundation. I represent the Indiana Chapter of the Cystic Fibrosis Foundation, and am their President of the board. I will be speaking several times on Saturday. More significantly my 14 year old son, who has Cystic Fibrosis, has been invited to speak as well. He's the first child ever invited to attend the annual meetings - let alone asked to speak. Here's a speech he gave a year and a half ago at age 12. (forgive the horrible video quality) He is delivering a similar speech twice on Saturday. [media]http://youtube.com/watch?v=cx1ocUOzxMw[/media] (if someone knows how to embed that video - please edit my post)
Good luck. Hope all goes well for you and your son. Sorry to hear about your son having CF, but isn't it something they can overcome with treatment nowadays??
Oh man, JMatt, I gotta say I really am happy to hear you partake in something so noble. It says volumes about a person and the fact that your son suffers from CF breaks my heart. I can't imagine having difficulty breathing to the point of gasping at times. Very nice and articulate young man you have there...I'm sure he makes you proud.
Tada!! I'm Baaaa--aaaaack! Thanks guys. It went very well. He spoke twice, got standing ovations. I spoke twice - no ovations. Of course, my speaking wasn't really the standing ovation kind of thing.
